GM CLAHRC encourage patient and public involvement in research implementation

The GM CLAHRC implementation team recently ran a workshop about the importance of Patient and Public Involvement (PPI), in the design and delivery of their projects. A wealth of information exists about the use of PPI in research. The team wanted to explore how this differs in the implementation of research and importantly, how they could build on existing activities to ensure that PPI is integral to their work. The workshop was facilitated by the evaluation team from Bangor University; Jo Mycroft-Malone, Chris Burton and Sophie Staniszewska from the University of Warwick.

The GM CLAHRC implementation team attended the event alongside, Tony Seargant, a member of the public who sits on the GM CLAHRC Board, and several academics, including the Director and Deputy Director of the GM CLAHRC. The main aims of the workshop were:

  • To explore what we want to achieve in the GM CLAHRC re: PPI and implementation
  • To look at what PPI currently works well and what the challenges have been
  • To develop an action plan for PPI and implementation in the GM CLAHRC.

Dr Sophie Staniszewska from the University of Warwick gave a presentation to set the context of why PPI is important. She talked about the different levels of involvement; consultative, collaborative and user-led, and how these could vary for different studies or at different levels of a project.

Ruth Boaden, deputy director of Greater Manchester CLAHRC said:  “PPI is a very important aspect of ensuring that our implementation projects are relevant and focused on patient requirements. There are many examples of effective PPI in our projects; for the IGT Care Call we had a number of patient focus groups and PPI formed a huge part of the evaluation of the project. The heart failure alert card had a lot of patient involvement from the onset for instance in designing the card and again in the evaluation we used telephone based interviews to assess the use of the card once we had launched it.

“PPI gives us an invaluable insight into what the patients’ needs are and with this we can begin to plan how we can be more patient led with our projects. This workshop has certainly given us a lot to consider in terms of improving our level of PPI for future projects.”

The workshop stimulated some very useful and interesting discussion, which is now being synthesised by the facilitators. This will lead to the development of some guiding principals for the implementation team on the integration of PPI into projects and, importantly, the effective delivery of PPI.

For more information on PPI in our projects click here.