End-of-life care study

Two women and a man holding hands and smiling.

Do you have experience of caring for a relative, friend or neighbour towards the end-of-life?

We’re looking for people aged 18+, who have experience of caring for someone at home towards the end-of-life, to take part in a study exploring the best ways to give patients’ relatives and friends information and training on end-of-life care.

A booklet – Caring for Someone with Cancer – has been developed by Professor Karen Luker and colleagues at the University of Manchester and the University of Liverpool. We’re hoping the booklet will support people caring for a friend or family member at home. We’d like to speak to family carers to explore their experience and attitudes towards the information and practical support given to them by healthcare professionals during this time. This will help us understand how the booklet could be used in the future.

We’re inviting people to take part in a focus group held at the University of Manchester. This will last approximately two hours. Between 6 and 10 people will attend the focus group and you will be encouraged to give your opinion on the ‘Caring for Someone with Cancer’ booklet and to discuss support for family carers caring for someone at home towards the end-of-life.

What the study involves 

  • You will take part in one focus group, held at the University of Manchester
  • The focus group will last approximately two hours, and will be audio-recorded
  • Before the focus group you will receive a copy of the ‘Caring for Someone with Cancer’ booklet
  • You will be asked to complete a background information sheet and sign a consent form
  • Participants will receive a £10 Love2Shop voucher as a thank you for taking part.

 Who can take part

  • We are looking for people aged 18+ who have experience of caring for someone, with cancer or another long-term condition, towards the end-of-life
  • The focus group will be held at the University of Manchester.  Travel expenses will be provided.

We are hoping the booklet, by offering information and support on the practical aspects of care, may reduce anxiety for the caregiver, and patients will be able to be cared for at home for longer.

More information

For more information, please see the participant information sheet.  If you have any questions, please get in touch by emailing amy.mathieson@postgrad.manchester.ac.uk.